Posts Tagged ‘disablism’

Prescott Needs a Community Inclusive Disability Council

January 1, 2012

Scooter and Sticky Analyze Their Community Disability Life Situations

Scooter and Sticky are enjoying their occasional Gimp girl luncheons at Ted’s Pizza on the Square. Taking turns interviewing each other about their respective disabilities, services, adjustments, and continuing constructive life style changes orchestrates their rambling. They both admire the statement from the White House lawn celebrating 20th anniversary of the A.D.A. that “Civil rights are not self-enforcing”. However, practical daily life strategies for different disabilities vary greatly and consume so much energy. Their discussions challenge them back on their respective tracks toward goals within shifting social systems neither fully understands. It’s scooter’s turn to quiz Sticky to organize her recent experience

  1. Scooter:
    Hey, how’s your perennial search for services comparable to SAAVI in Tucson or Lighthouses around the country?

    Sticky:
    Growl. As far as I can tell, New Horizons is still the main game in town, actually way out there in PV. Yet another vision specializing occupational therapist closed up her practice, and I’ll miss her. New Horizons and some other “vendors” held a Low Vision Expo at the Adult Center where I met some new Vision Losers, but I’m not appraised of the exhibit’s after effects. I met a home schooling mom of two children with disabilities in the PPL elevator who confirmed my experience. It’s hard to get services except by piggybacking on vocational rehab or school special ed if you are retired.

    I just keep wondering how many other folks like me are out there looking for services, not even sure what they really need. Who in Prescott would have stats on my, or your disabilities, like how many diagnosed and how many being served? And how do people get referred around the state, medical, charity, nonprofit, etc. like groups? Somebody must know, but our intuitions raise the right questions.

  2. Scooter:
    Don’t the eye doctors handle that? You mean, they don’t address like how your life changes and where to get help?

    Sticky:
    Not often in my experience. One referred me to Second Sight rehab but that operation is long gone. Usually they send you off to the Phoenix based Low Vision practices which offer high priced reading equipment as well as magnifier thingys. But nobody on the medical side seems to have a charge code for dealing with life changing effects of their diagnoses.

    My best source for about 15 years has been MDSupport.org, run by retired music teacher Dan Roberts. His motto is that “no patient should leave after a diagnosis feeling it’s hopeless”. That website and mailing list is a Wikipedia of vision-related information and the mailing list for Macular Degenerates regularly connects cool people and their diverse experiences. But the docs ignore anything not optical or retinal and live over in another silo. This predicament is national, really international, so MdSupport helps patients prepare questions to prod information out of the medical people.

    There’s also locally People Who Care seminar on Confident Living that introduces vendors if you happen to hear of it by word of mouth or Daily Courier notices. This is good introductory information but progressive vision loss means continued learning new skills for the rest of our lifetimes. I’m proof of how much a motivated person can learn on her own, but, let me tell you, it’s really hard work for my family as well as myself.

  3. Scooter:
    So, exactly what kinds of services are you talking about?

    Sticky:
    First, and foremost, is OMT, Orientation and Mobility Training. Like how to use my precious $35 white cane, clamber up stairs, find buildings, and, horrors, cross streets. I had to wait a year after getting put on the list for state paid OMT specialist Kim in Sedona but she retired or quit. Finally, I broke down at the People Who Care seminar I went to and got lined up for lessons with a Special Ed OMT person during the summer. Those few lessons gave me independence and staved off isolation, with Yavapai College as my main OMT practice area and now playground for courses at OLLI. Ironic that the cost of that OMT would be far less than any single trip to the ER! but OMT isn’t generally available.

    Other stuff Lighthouse and SAAVI do are called ADL, Active Daily Living, like cooking, labeling clothes, signing checks, and other things you never thought about needing to learn. Braille literacy and computing technology, too, of course. My favorite Prescott helper,, probably unknown to anybody else, is the Talking ATM at Chase Bank – plug in ear buds, listen to menus, punch the keypad, and walk off with your cash. Beautiful!

  4. Scooter:
    A lot of that sounds like regular training to upgrade your skills. How do you keep up? What are all those gadgets you carry around?

    Sticky:
    For years I’ve listened to podcasts which I automatically download to hear recorded demonstrations, interviews, group discussions, even book clubs, all organized by Blind people. Like Main Menu from the American Council for the Blind, AccessibleWorld.org community rooms, and Blind Cool Tech. It took some mind warping, but I crossed a cultural boundary when I discovered how much the Blind could teach me living partially sighted.

    A friend took me to exhibits spread across several hotels at LAX showing all the assistive tech products I’d heard about on podcasts. Even Stevie Wonder showed up at one booth I was scouting. So, I bought a lot of listening devices and shifted all my reading, TV watching, and writing to using these audio feedback hand-held gadgets. Here, this black phone looking box, called a BookSense, has over 1000 books I’ve collected from Bookshare, a volunteer and publisher supported distribution system. For $50 annual BookShare fees, I also get NYTimes best sellers and NewsLine NYTimes, Washington Post, New Yorker, and more. Reading just keeps getting better and rarely causes me much hassle.

    Now, this past year, I’ve picked up the iPhone, really a little computer with an ecosystem of apps that merge specialized assistive tech into the mainstream. Like, my iPhone tells me currency, sends away pictures I cannot identify for near instant interpretation, plays my podcasts, scrolls my Twitter TimeLine, and also reads books and news. A little voice tracks my fingers moving on the screen and gives me complete control of the device.

    My computer setup is a simple Windows netbook, costing about $300, with a free screen reader to feedback my keyboarding and speak out text on the screen. I think I spent about $1500 in 2011, not as much as most years, for upgrades, new tech, and services. Students and employees get more expensive stuff through tax paid funds, boosting prices in the so-called disability-industrial complex, so people like me are paying out of our retirement funds. Ouch, but worth it!

  5. Scooter:
    So, you must be a great community resource! Do you give courses in this tech wizardry?

    Sticky:
    sure I do offer but most people losing vision have trouble making this tech transition. Our brains have to shift from seeing to hearing and most people want to hang on using vision as long as possible. Magnifying from their computers works, but is very slow. I’ve helped a trainer from New Horizons learn the computer screen reader I use, called NVDA. But there isn’t a critical mass of local users like me to convince new Vision Losers to try mysterious gadgets and overcome what I’ve dubbed Synthetic Voice Shock.

    Honestly, it’s lots of hard work to learn all this, took me many months on each gadget to get comfortable. We need more teachers and understanding of how this tech works. My best experiences have been a 2 hour session on “Using Things That talk” at OLLI. And I have a nicely organized collection of the podcasts I’ve learned from that I can distribute on DVD or 4GB flash drive.

  6. Scooter:
    If I understand you correctly, most of what you Vision Losers need is out there, but not integrated into any location in Prescott, let alone understood by the medical profession. What is the crux of this problem?

    Sticky:
    It’s like the whole system is broken, locally. Nationally there may be a serious lack of trained vision rehab specialists,made worse by geographical distribution. It takes enough consumers, i.e. Vision Losers like me, to support these services, but there also must be a healthy referral chain from eye doctors and sharing of personnel among retirees, employment seekers, and students. It’s a mess! And nobody has the stats out in the public of this city to help understand how big a mess!

    Now, remember, this isn’t charity we need. Occasional potlucks or outings might be nice, but personally I want to maintain and grow my relationships among people with broad interests, like AAUW and YC OLLI, and maybe even an OCCUPY or political sideline. Plus family and remote friends.

    Of course, lack of public transportation is a major barrier, but asking for that invites a smack down. “Costs too much! Gotta keep every street re paved and broadened and make people think this is a great place to retire”. That brings up another topic, about how much money is really sitting around in nonprofits or federal funds or raised annually that could generally improve services? Who knows? Who cares?

    One cool idea I’ve heard about elsewhere is an “Aging in Place Concierge” service. I actually used something like this in Tucson, called Red Rose, two women operators who would do whatever you needed for flat rates, like $35/hr. Pet sitting, rides, mail sorting, light repair, whatever plus knowing the existence and quality of services for outsourcing. I’d love to find that in Prescott!

  7. Scooter:
    I heard about some new communications practices that seemed important, like preventing loss of life as in Katrina. Did you participate in an emergency preparedness test last year?

    Sticky:
    No, was there one? I think it’s the national Broadband.gov effort in the FCC that is rolling out those tests. Like not relying only on radio and those scrolling lines on TV screens I cannot read will be replaced by a system sending notices in forms I could use, including ring tones, vibrations, and text messages on my iPhone. But communities have to take responsibility for linking up with the funding and implementation of that national provision. Who in Prescott does that? Where do I sign up?

    Out of curiosity last year, I joined in listening to the White House Disability monthly conference call. Lots of info, like transportation regulation changes, oh, wait, not to worry there. But medical, independent housing, broadband, education, across the board good stuff is happening. But not locally unless someone is on their toes to learn and spread the word. Who would that be?

  8. Scooter:
    Just wondering, do you ever hear the A.D.A. mentioned in your circles within Prescott?

    Sticky:

    Oh, the YRMC got a little play in the Daily Courier and a big notice in DisabilityScoop and Disability.gov last year. Actually, it sounds like they did the right thing, training their personnel, after a deaf complaint denying ASL. I wonder if that training is available at other city sites.

    It would also be interesting to know how many A.D.A. complaints and grievances have been filed and how they were resolved. Like the VA, colleges, and city parks and streets are covered. YC campus is pretty habitable, at least for this long cane walker. However, I don’t understand how anybody on scooter or wheelchair or care-giver arm can negotiate those advertising placards in front of every store downtown. Often I get stuck among them, the benches, and plants or run smack into oncoming pedestrian or bike traffic as I decide which way to go around those damned barriers. Another common problem is construction on sidewalks, like how am I to know how to get around a ditch or find another route? And, ice on sidewalks and bridges gives me weeks of Cabin Fever, missing my 1.5 mile daily walk on those blessed smooth streets. But who do you contact about these problems
    , trying to avoid a formal complaint? Do you know?

    Hey, Scooter, do you know the term TAB, as in Temporarily Able Bodied? Not like other civil rights, disability is a category anybody can join any time. And everybody will join if they live long enough. Plus, disability doesn’t happen just to individuals but also to that person’s family, friends, and colleagues. Yes, disability should be a universal concern.

  9. Scooter:
    sounds like there are Lucky Vision Losers who won the lottery being located near services. And then there are Unlucky Vision Losers stuck in a frayed web of confusing groups with no central organization looking after them?
    What do other cities and regions do?

    Sticky:
    A quick web search turns up many “Mayor Disability Council” where city offices, disability service vendors, charities, and, most important, disabled people themselves. You can even listen in on recordings of the San Francisco Disability Council, with transit, independent living, A.D.A. complaints, and more on the agenda with feedback and suggestions from “consumers”, i.e. people with disabilities, many far worse than you and I experience.

  10. Scooter:
    Eureka! Let’s get together with more representatives of other disabilities and form some kind of Community Council that really addresses these problems we’ve been talking about.

    Sticky:
    Great idea! Read on fora draft to get us started. Educate! Advocate! Liberate!

Prescott Arizona Really Needs a Disability Council


  1. Collect and publicize data on services available, services provided, and services needed
  2. Publicize and implement federal and state guidelines and mechanisms, such as emergency preparedness
  3. Coalesce and channel charity, nonprofit, federal/state/city funds toward services as articulated by citizens with disabilities
  4. Match citizens with disabilities to boards, advisory groups, city committees, etc.
  5. Publicize and accept A.D.A. complaints and grievances and promulgate resolutions
  6. Support peer communication among people with different as well as same disabilities and common needs
  7. Provide public training on organizing events, managing facilities, and communicating with persons with disabilities

What do other cities do with their disability services and citizens with disabilities?

Chatanooga Mission Statement

The Mayor’s Council on Disability’s overall mission is to promote policies, programs, practices, and procedures that give equal opportunity for all individuals with disabilities, regardless of the nature or severity of the disability; and to empower individuals with disabilities to achieve economic self-sufficiency, independent living, and inclusion and integration into all aspects of society.

Retire CAPTCHA style thinking, please

December 26, 2011

This is my annual post evaluating progress, if any, in accessibility as measured by the Congressionally recognized Computer Science Education Week outreach website. This year, oh, my, the tone of non-inclusiveness rings so loud and clear.

Regarding the NSF CISE Bits and Bytes article touted by CCCBlog honoring CSEdWeek

Did you know that the *you* of the NSF article touting re CAPTCHA doesn’t include teachers, students, researchers, citizens, and other **subhumans* with sensory or cognitive differences that limit their abilities to pass the barrier of those wiggly lines? Did you know that buying tickets, signing up for social media, commenting on websites, or applying for jobs is a privilege denied to many people otherwise fully human? Did you know the “evil CAPTCHA” is a symbol like drawing a bar across the universal wheelchair badge?

Do you know the stats of qualified individuals not in the CS field due to problems with inaccessible teaching materials, practices, pedagogical tools, and inexperience working with students with different abilities? do you know extraordinary blind developers Mic and James awarded FCC recognition for a free screen reader replacing expensive assistive technology and opening the doors for millions around the world thru NVAccess.org open source project? Do you realize the opportunity loss that educational settings suffer when those who don’t pass the CAPTCHA test aren’t present thereby perpetuating generations of students not exposed to universal design principles and evidence of their benefits?

I’m one of those subhumans excluded by re CAPTCHA, with strong karma from my earlier days as a sighted researcher and educator. May I invite you to another world “beyond the CAPTCHA”.

  • Download iBlinkRadio app for your smart phone to listen to loads of upbeat geek talk on the technology that enables full lives within blind communities. Notice the appreciation for Apple’s strides in usability of mobile products. TrippleClickHome to turn on VoiceOver to go where your eyes aren’t needed.
  • Link through #a11y or #accessibility to Tweetups of professionals who work for inclusion through computational thinking.
  • Read up on good engineering from Chisholm and May “Universal Design for Web Applications” book and dozens of blogs and YouTube videos.
  • You might run across WebVism and Solana social responses to the “evil CAPTCHA” and positive crowd sourcing apps like VizWiz and its companions on AppleVis.com.

Wow, what people outside computer science research and education have accomplished for their own survival and advancement, despite CAPTCHA style thinking.

so, I took my dismay at the NSF/CCC non-inclusive perspective to the CSEdWeek feedback page. Lo, I could not post due to a visual only or something CAPTCHA! What were you thinking, computing association managers, to not require and test for accessibility when you so high mindedly push outreach from the computing field? The Top 10 CCC posts are truly impressive, but the humanity of the computing field exemplifies the world of TAB (temporarily abled body) thinking. It’s great if reCAPTCHA does a bit of good for resurrecting print archives, but there’s an even better story in great technology, social interaction, hard work, and stamina to dismantle the artificial barriers like wiggly lines and garbled audio. And, really, who would think there aren’t ways to pay $.50 to web workers to attack those yet un scrabbled text fragments?

How about making 2012 CSEdWeek truly inclusive? Require and test for accessibility of your websites and messages with modern practices and involving real students, educators, researchers, and citizens with more physical and cognitive diversity than the TAB world promoted so far. No, this isn’t a $10M research initiative but rather remedial work to bring thinking and practices up to a modern level of respect for civil rights and the crucial role of usable technology for everyone.


Retire the CAPTCHA style mentality,, please.

  1. Computing Community Consortium empowering U.S. research

  2. NSF CISE newsletter touting reCAPTCHA using computation with properly equipped humansFunder of BPC, Broadening Participation in Computing
  3. Computer Science Education Week outreach events, needs an accessibility statement and commitment
  4. FCC Broadband Accessibility initiative and winners including home of free open source screen reader NVDA
  5. Is CS Education ready to honor the A.D.A.? the EDUCAUSE perspective

  6. Will CS meet accessibility in 2011? Long way to go!

Will Computer Science Meet accessibility in 2011?

January 18, 2011


I’m a legally blind retired computer scientist. As I gained proficiency with assistive technology for reading, writing, and communicating, I faced similar costs, barriers, grievances, and coping challenges as thousands of other computer adept late career people. However, I also take a keen interest in effectiveness and usability of my access tools and the media they work upon as a total system for processing information in our marvelously plastic brains. And, as former educator, researcher, and manager, I look upon my profession as contributors to both sides of the problem and solution arenas acting under broader social forces from government, demographics, and mainstream technology industries.


May I share my unique experience with you? Here’s my take on the current state of computer science (CompSci) related to Persons with disabilities (PwD)in general and the specific opportunities for visually impaired persons. Assistive technology refers to software like screen readers that use text to speech and keyboard focus interactions with operating systems, applications, and web pages. Accessibility is a matter of degree to which the applications, OS, and web sites support assistive technology. to achieve the same performance and satisfaction as all other users.

responsibilities, accountability, openness, and Opportunities for CompSci


are educational institutions now, in 2011, ready to embrace disability civil rights? Is the academic computing field prepared to integrate advances from the separated assistive technology industry and the generation of students raised with strong but different skill sets? Can CompSci meet its aspirations of providing the 4th R of education for everybody? Will there be movement to re-mediate decades of deficient designs of web information management systems and individual documents? where does CompSci and information technology fit into this solution, or problem, space?

basic accountability as an academic discipline


Like all educational fields that use web resources to assist education, the CompSci and IT fields are clearly responsible for adhering to standards that mitigate barriers for people with disabilities using available assistive technology. Especially where costs of access technology and special skills have been attained through rehabilitation resources or even individual investments, this is immediately a matter of jobs for PwD. Moreover, there are ripple effects for all intermittently or eventually disabled persons or caretakers, or tax payers, and that is everybody several times over.


Have our fields done well so far? No, as shown by flaws revealed traversing the 2010 Computer Science Education week and partner websites (see data below). These are rife with stumbling blocks, and generally exhibiting indifference to established design and usability practices. Barriers are unnecessarily erected, and unfortunate messages of ignorance and indifference indicate a field not so much up with trends in user oriented communication. or even acknowledging sensory differences in users.

domain responsibility of the CompSci field

CompSci and IT bear the additional responsibility of producing the tools, languages, and patterns; the programmers, designers, and testers; the processes, quality assessments, and design strategies; interfaces, interaction models, and transactions; the books, published articles, and motivations; and so on, that underlay the capabilities for educational institutions to meet their basic accountability.

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Further CompSci responsibilities are the development of cultures where people with disabilities exhibit their skills and tools to demonstrate how well they can produce software and hardware products and artifacts. Beyond Cultural integration is the need for domain knowledge, e.g. how screen readers and caption systems work and how artifacts must be designed for smooth operation by persons using assistive technology.


CompSci has often promoted pedagogical tools like Alice and scratch that explicitly bar people with certain disabilities getting equal footholds in and excitement about computing. Nevertheless, many people have not only become high functioning but also innovative regarding access technology, including the very products I’m using to write this article. A community of computing oriented professionals have banded together to produce the aforementioned standards, tools, processes, and businesses that await adoption by CompSci and IT.

Computational thinking opportunities await CompSci


In fact, the above strengths and weaknesses of the social motivation for overcoming limits for PwD are truly, really, beautifully illustrative of computational thinking. The widely used WCAG standards are a fledgling “science of accessibility” with tested hypotheses, guidelines,, terminology, and a blogging trail of intellectual progress. Good web pages are all about semantics: markup, logical structure, sound relationships (in a database sense), and progressive enhancement design to transform semantics with syntactic elements like color and graphics. The essence of accessibility is support for multiple representations where access tech supplements or replaces sensory limits. Abstraction, semantics, representations, implementations, relationships, … are the sound principles for achieving the technical aspects of basic accountability and additional responsibilities of computing fields.


Hey, take the challenge! What should CompSci and IT do?

  1. clean up our websites, a good goal for Cs education week 2011. Read the standards, use guidelines and tools to re-mediate and assess quality, then do the work. With remediation of technical zits will come a better understanding of the computational thinking issues that should lead to improved designs.
  2. Take responsibility for explaining disabilities and accessibility to educational colleagues. Incorporate local disability service professionals and
    enlist the fear and concerns of university management to assure resources.

  3. audit all pedagogical tools and artifacts and label each for sensory and disability limitations. Then progress toward the better products available while applying computational thinking for more universal representations.
  4. Use the competitive, exciting advances of tablets, smart phones, text to speech, and accessible apps to motivate and explain both how accessibility works and why it matters in our economy. Just open up the hood under the accessibility options and check out the high performing speech interfaces.
  5. Learn to talk with persons with disabilities about their
    needs, high functioning skills, innovative tools, and culture.

  6. Do not feel bad about lack of experience or past mistakes. We are all overdue with a dose of karma, such as this writer who cannot use or maintain security education applets I developed five years ago. Ouch!

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Overall, let’s open up a new field of computing, pull publications out of the ACM pay wall, and lead the way through computational thinking.


why not?

Issues, evidence, and epiphanies

are the feds really coming after universities for inaccessibility?


The Obama administration departments of Justice and department of education Office of civil rights have certainly shown signs of action backed up by White House ceremonies and initiatives:


On the positive side, California state University system is often praised for its improvements. Sadly, a funded study of analysis of university web accessibility is hidden in an obscure journal.


If all this comes to fruition right under the noses of congress, regulatory and advocacy will open many doors for computing professionals with a bent toward social entrepreneurship and intriguing technology advances. By the way, the professional accessibility virtual water cooler spreads daily updates on Twitter .

What will happen if universities are forcefully or voluntarily driven into accessibility? We may know by 2012.

why hasn’t accessibility and assistive technology taken hold in computing research and education, ?


As a former educator, I’ll take the all purpose route of blaming the textbooks? One form of blame is the presentation of content as in printed tomes, derived from WORD documents, spruced up by publishers, and embellished with instructor power points all performed without consideration for readability by print disabled students. This forces, I’m not kidding, hundreds of pages to be scanned into electronic forms where most original MS-WORD structure is lost, i.e. hours of labor in an error prone incomplete reverse engineering process.

How dumb is that?well, nationally, this problem is being rectified by bookshare under a department of education contract to adapt, just once in an industrialized manner, many college and K-12 textbooks. However, there isn’t a similar well known cooperative effort specializing in computing texts, or efforts by publishers except for Oreilly Media contributions of its electronic versions directly to bookshare.


Now, consider textbook content itself. Are there any, like more than 0, standard computing texts that contain chapters and exercises on assistive technology and accessibility as recommended in standards and produced by specialized branches of software and publishing industries? Please comment any examples.


the root of all evil in textbooks goes back to curricula accreditation. Omitted there, and frozen into practice, accessibility principles are instead forced into industry workshops, such as Knowbility Access U and Open Web Education Alliance. This further differentiates career paths with web development considered a craft, combining touchy feebly communication, advertising fodder, turnkey content management systems, and a steady flow of freelance or in house jobs open to lesser educated mortals.


The irony is that web accessibility is one of the best exemplars of “computational thinking” that has driven some higher echelons of CompSci leaders. See my 2009 post on many ways accessibility and assistive tech put computational thinking in action for pedagogical practices.

really? is the W3C nurturing a “science of accessibility”?


Read the W3C Web Content Accessibility Guide 2.0 and “Universal Design for Web Applications” by Wendy Chisholm and Matt May for lively explanations and motivation for the WCAG standards.


There’s an amazing amount of thought hammered into shape and utility in these guidelines and scenarios on the w3C web site. Rather than tons of funded research projects to identify hypotheses and perform experiments and build prototypes, the standards bodies combine experiences from developers, authors, consultants, and gadflies who really care about their subject. social and technical consequences. Fights and personalities drive discussions toward articulation and analysis that don’t come out looking like ACM portal abstracts. Nevertheless, pick any recommended practice, e.g. headings and logical structure in web pages, and you’ll find rationale, practical hedges for difficulties, and the basis for better controlled and more academically rigorous investigations.


As for the actual academic research communities, there’s a strange legacy of publication practices that make it difficult to track the field. Conference papers disappear behind the ACM Digital Library Portal pay wall. Institutional and individual members of ACM have access that people like this retired researcher have to fork over $200 to reach. Even paying the ransom isn’t enough, as I found it exceedingly difficult to negotiate the search interface in the 2008 time frame, and without response to requests for assistance. In other words, the publication pay wall is an inhibitor to the spread of insight on accessibility from perfectly serious and hard working researchers. How silly is that?


The notable exception I track is the work of professor Richard Ladner at U. Washington research and outreach and his prolific junior colleague Jeffrey bigham, now at U. Rochester. WebInsight project publications are available as readable PDF’s organized well by topics and authors that offer the bulk of their funded research.. These publishable fundable research results are intelligible, related to the standards versions of their science, and especially interesting for a user of the technology attracted to computational thinking, i.e. me. But then the papers reference too often into the ACM portal black hole. Wouldn’t the field progress more rapidly if more people could read such publicly funded publications and appreciate the experimental models being applied?


One additional topic I tracked was an award winning paper mentioned in Professor bigham’s blog on web research, namely the collaborative accessibility project at IBM Japan. However, the best I could find was a useful Youtube video on “social accessibility”. Indeed, with additional perspectives from the grass roots operational social accessibility projects webvism community tagging and solana for cracking the evil CAPTCHA barriers facing visually impaired web users. Indeed, find screen reader and accessibility videos on Youtube including Easy Youtube since Youtube itself is marginally accessible.


another interesting area is accessible apps for apple and android mobile products. There are important engineering lessons here regarding accessibility integration into the architecture, with apple doing it well, Google trying to paste on its talkback capability, and Microsoft admitting it blew off accessibility in its win 7 phones. Google Android accessibility is dubbed the “Model T Syndrome” for not applying state of the art engineering techniques, expecting visually impaired consumers to wait years for reasonable functionality and usability.


Finally, for the serious minded computer theory connection, visit the IBM researcher and leading accessibility guru Jim Thatcher articles on practical standards in business as applied to Amazon.com, Target.com, and many .gov websites. This wealth of robust reasoning and decades of experience are truly awesome.

What’ is the evidence for bad accessibility practice in the computing field?


Here is a test you can perform yourself.


Start the CSED Week test in Web Aim WAVE analyzer. Yes, click that link and now you’ve been seduced into web page testing! Now, look for the link to Partners, click and see the errors there. Keep going for the partner websites, opening and analyzing each web site. Keep going and you will be amazed at the WAVE complaints as the page structures are revealed in their semantic nakedness.


Lots of errors, right??? Let me explain how the errors affect my reading using an interactive access tech “screen reader”, illustrated in recordings in the 2009 post.

  1. The “missing ALT description” error tells me the web site developers have no clue about accessibility, ignoring the most basic rule. Visually impaired people cannot know what’s in your graphic, why it’s there,if it is decorative or meaningful in context.
  2. At the higher level of page structure are errors in omitted headings, irregular heading levels, and uninformative headings. The basic problem for someone visually impaired is building a reliable map of a page to transform from a linear search by laboriously tabbing from one HTML element to another. The outline tells me quickly what’s on the page, just like the outline of any well written document. Rarely do I find a web page from a CompSci organization with a good outline, often omitting headings entirely. Another indicator is irregular headings, like H4-H1-H3 which usually indicate confusion among semantics of headers and font-style presentation issues better handled by style sheets.
  3. Unlabelled form elements can be a show stopper when leading a person and screen reader through a donation or purchase or registration form. The proper HTML has an explicit corresponded between label and element, call, duh, “Label”. Without labels, the user just hears “edit box” rather than “first name edit box”. Forms are really complex , often associated with transaction timeouts and monumental headaches locating and fixing errors. Again, there are good rules for creating usable forms, which the unlabelled form element error tells me the developer has ignored. Do they want my business?

  4. Standalone link names are important for, like headings, a link abstraction allows rapidly skimming for general context and specific refinements.”Click here”, “here”, “read more”, and “learn more” require the screen reader user to search around for context. See post “I don’t want to click here” for a humorous take on this annoying practice.
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Webaxe guide to introductions to accessibility and its demo podcasts is a good place to start and also entertaining. WebAim Web Accessibility in Mind also offers an annual empirical analysis of screen reader use and many checklists and guidelines. One caveat is that WAVE, although free and easy, is susceptible to flaws of any static analyzer with false hits, cascading errors, and interpretation of results. However, our tests show that it readily exposes often embarrassing mistakes just waiting for correction. My favorite was a major CompSci blog with hidden text offering Viagra remedies.


While many of these complaints relate primarily to technical communication, there are true design problems related to search tasks, as on the ACM Digital Library, and on large multi-organizational websites like universities. Beyond accessibility, as in supporting technology, are issues of bandwidth limitations, small screen mo vile devices, and user choices on browser script security. While not formalized as in “structured programming” or “object-oriented design”, the recommended engineering practice is “progressive enhancement”, starting from a purely semantic page that covers the basic content and separates presentation layers which a browser can strip away to assure the content is preserved in many contexts. It cannot be emphasized too much: the person using a screen reader is working directly with the semantic content provided by the developer. Designer focus on color, fonts, graphics, and interactivity are truly only “in the eyes of the sighted reader” and may add to but should not obscure the essential page content. and use cases. In other words, the analyses provided by tools like WebAim WAVE and even more important, the mental model in the person using a screen reader provide a favor to page designers by pointing out flaws.

And, is there any good news?


Definitely,when cultural divisions are bypassed, are growing assemblage of tools that enable someone losing vision to maintain their computer skills, provided they can access the training and guides to re-build their own environment. Admittedly, regaining capabilities after vision loss requires months of hard work, willingness to learn new approaches, and acceptance of major life changes.

  • AThe free, powerful, open source screen reader NVDA (NonVisual desktop access) competes with established $1000 pricey products on Windows platforms. I truly enjoy, and donate to, the mailing list of international users who daily test and share advice on this Australian generated project. Its developers are blind, primarily using python. These guys deserve a major computing award for their global contributions and professionalism in their twenty-something age ranges.
  • The miracle of Text to Speech that activates the hearing sense into an alternative channel into our brains where reading actually takes place. While older people may take more time to rewire their brains after vision loss,it’s truly remarkable that vision can be so minimalist in computer usage, provided accessibility is engineered into our software and information sources. Now, we’re poised to take on the challenge of “information visualization without vision”, seriously a cognitive and technological adventure in literacy and openness.
  • Bookshare and NFB News Line downloadable a alternative for print disabled services that brings literally 1000s of great books and daily newspapers to our fingertips in wireless seconds. Never did I imagine I could have such a great store of information to support my retirement book club, lifelong learning, and social entrepreneurship activities period. Materials are read by synthetic speech from DAISY, an XML based, international standard for audio and text content.
  • Levelstar Icon Mobile Manager and Docking Station, designed and distributed by a blind engineer, that streamlines my access to Bookshare, NewsLine, Twitter, email, and RSS. Most sighted, and now blind, people will enjoy an immense number of accessible iPad apps, a direction I’ll soon be taking myself.But the Icon sets a high bar of throughput I don’t expect to find on any other device by avoiding screens, using spoken menus and text reading. Another award worthy young technologist for CompSci to learn from.The implementation software for this handheld LINUX box is python and sqlite.
  • The #a11y Twitter community of accessibility gurus, blindness advocates,normal blind working folks, and inspiring authors lifts me up every day with humor and an unbelievable syllabus of linked readings. I never expected to find such a “School of Twitter” in social media that could fill my local personal and professional void. I especially value AccessibleTwitter website and demonstration for its common sense, ease of use, and challenge to the big clunky Twitter, which is, of course, the data source and API.

  • I’m also grateful for professional opportunities to potentially influence the direction of computing through the CMD-IT Center for Minorities and Disabilities in ITan, its Board of Advisers, and energetic organizer. I’ve written two other posts input to an NSF Task Force on CyberLearning, and hopefully await an insightful report.
  • Close to home, I appreciate the opportunity to connect with a few local disability professionals and volunteer groups. I’ve seen first hand how a broken rehab system requires enormous cooperation and energy to bring to ever more baby boomers losing vision the tools and experience I managed to find for myself. For all the $$$ spent on research, the chain of referrals and services beyond the medical plateau leaves so many of us just hanging on precariously while trying to find our ways through the inevitable grieving and depression cycles. It shouldn’t be this way in a
    wealthy world, requiring not charity but rather planned delivery of existing resources, as related in Jane Brody’s NYTimes articles on vision loss.

The 2011 CompSci Meets Accessibility Manifesto


And that latter point is where my disappointment with the handling of assistive technology and accessibility in computing has lead me to put considerable effort into writing up this critique. We just have to do better in accountability within institutions, domain responsibility for our professionals, and awareness of the depth of effectiveness of our computational thinking methods. Thousands of jobs depend directly on our outcomes for accessibility and quality computing products, plus centuries of better quality of life for everyone sooner or later. Let’s make accessibility meet computer science professionally in 2011.


We’re now at a teachable moment for assistive tech and accessibility in computing education. Everybody has the basic functions in their hands, literally, and for free. Windows users can download capable free open source NVDA screen reader and try testing web pages. Android and IOs users turn on their text to speech and learn credible NonVisual manners of using myriad interesting and useful apps. Come on, anybody can learn to work like a low vision person so the days of descending into the exorbitantly expensive blind ghetto for access tech is over. Anybody from now on who produces inaccessible pedagogical products or sloppy web pages is out of excuses. Your artifacts are testable, the testing tools are available, the engineering practices are wedded with the science of accessibility in standards. and people with sensory limitations like my hazy vision have those access tools at their fingertips, skilled and raring to use products made for mainstream but accessible if properly designed. So, failure to step up to this challenge and do the right thing, which really isn’t so hard and actually is good for business, is a choice of accountability, responsibility, and opportunity.

Beyond Universal Design – Through Multi-Sensory Representations

January 8, 2011

<The following recommendation was offered at the CyberLearning workshop addressed in the previous post on CyberLearning and Lifelong Learning and Accessibility. The post requires background in both accessibility and national funding policies and strategies.


This is NOT an official statement but rather a proposal for discussion. Please comment on the merits.

Motivation: CyberLearning must be Inclusive

To participate fully in CyberLearning, persons with disabilities must be able to apply their basic learning skills using assistive technology in the context of software, hardware, data, documentation,, and web resources. Trends toward increased use of visualizations both present difficulties and open new arenas for innovative applications of computational thinking.

Often, the software, hardware, and artifacts have not been engineered for these users, unforeseen uses, and integration with a changing world of assistive tools. Major losses result: persons with disabilities are excluded or must struggle; cyberlearning experiments do not include data from this population; and insights from the cognitive styles of diverse learners cannot contribute to the growth of understanding of cyberlearning.

Universal Design Goals

Universal design embodies a set of principles and engineering techniques for producing computational tools and real world environments for persons usually far different from the original designers. A broader design space is explored with different trade-offs using results from Science of Design (a previous CISE initiative). Computational thinking emphasizes abstraction to manage representations that lead to the core challenges for users with disabilities and different learning styles. For example, a person with vision loss may use an audio channel of information received by text to speech as opposed to a graphical interface for visual presentation of the same underlying information. The right underlying semantic representation will separate the basic information from its sensory-dependent representations, enabling a wider suite of tools and adaptations for different learners. This approach transcends universal design by tapping back into the learning styles and methods employed effectively by persons with many kinds of disabilities, which may then lead to improved representations for learners with various forms of computational and data literacy…

Beyond Universal Design as Research

beyond Universal Design” suggests that striving for universal design opens many research opportunities for understanding intermediate representations, abstraction mechanisms, and how people use these differently. This approach to CyberLearning interbreeds threads of NSF research: Science of design and computational thinking from CISE +human interaction (IRIS)+many programs of research on learning and assessment. +…

Essential Metadata Requirements

A practical first step is a system of meta-data that clearly indicates suitability of research software and associated artifacts for experimental and outreach uses. For example, a pedagogical software package designed to engage K-12 students in programming through informal learning might not be usable by people who cannot drag and drop objects on a screen. Annotations in this case may serve as warnings that could avoid exclusion of such students from group activities by offering other choices or advising advance preparation. Of course, the limitations may be superficial and easily addressed in some cases by better education of cyberlearning tool developers regarding standards and accessibility engineering.

Annotations also delimit the results of experiments using the pedagogical software, e.g. better describing the population of learners.

In the context of social fairness and practical legal remedies as laid out by the Department of Justice regarding the Amazon Kindle and other emerging technology, universities can take appropriate steps in their technology adoption planning and implementation.

Policies and Procedures to Ensure Suitable Software

For NSF, appropriate meta-data labeling then leads to planning and eventual changes in ways it manages its extensive base of software. Proposals may be asked to include meta-data for all software used in or produced by research. Operationally, this will require pro posers to become familiar with the standards and methods for engineering software for users employing adaptive tools. While in the short run, this remedial action may seem limiting, in the long run the advanced knowledge will produce better designed and more usable software. At the very least, unfortunate uses of unsuitable software may be avoided in outreach activities and experiments.
Clearly, NSF must devise a policy for managing unsuitable software, preferably within a 3 year time frame from inception of a meta-data labeling scheme.

Opportunities for Multi-Sensory Representation Research

Rather than viewing Suitable Software as a penalty system, NSF should find many new research programs and solicitation elements. For example, visual and on visual (e.g. using text-to–speech) or mouse version speech input representations can be compared for learning effectiveness. Since many persons with disabilities are high functioning in STEM, better understanding of how they operate may well lead to innovation representations.

Additionally, many representations taken for granted by scientists and engineers may not be as usable by a wider citizenry with varying degrees of technical literacy. For example, a pie chart instantly understandable by a sighted person may not hold much meaning for people who do not understand proportional representations and completely useless for a person without sight, yet be rendered informative by tactile manipulation or a chart explainer module.

Toward a Better, Inclusive Workforce

Workforce implications are multi-fold. First, a population of STEM tool developers better attuned to needs of persons with disabilities can improve cyberlearning for as much as 10% of the general population. Job creation and retention should improve for many of the estimated 70% unemployed and under-employed persons with disabilities, offering both better qualities of life and reduced lifetime costs of social security and other sustenance. There already exists an active corps of technologically adept persons with disabilities with strong domain knowledge and cultural understanding regarding communities of disabilities. The “curb cuts” principle also suggests that A.D.A. adaptations for persons with disabilities offer many unforeseen, but tacitly appreciated, benefits for a much wider population and at reasonable cost. NSF can reach out to take advantage of active developers with disabilities to educate its own as well as the STEM education and development worlds.

Summary of recommendation

  1. NSF adopt a meta-data scheme that labels cyberlearning research products as suitable or different abilities, with emphasis on the current state of assistive technology and adaptive methods employed by persons with disabilities.

  2. NSF engage its communities in learning necessary science and engineering for learning by persons with disabilities, e.g. using web standards and perhaps New cyberlearning tools developed for this purpose.

  3. NSF develop a policy for managing suitability of software, hardware, and associated artifacts in accordance with civil rights directives to universities and general principles of fairness.

  4. NSF establish programs to encourage innovation in addressing problems of unsuitable software and opportunities to create multiple representations using insights derived from limitations as of software as well as studies of high performing learners with disabilities.

  5. NSF work with disability representing organizations to identify explicit job opportunities and scholarships for developers specializing in cyberlearning tools and education of the cyberlearning education and development workforce.

Note: this group may possibly be
Related
National Center on Technology Innovation

Disablism: the good, Bad, and Maddening

May 1, 2010


Disablism Day May 1 2010

I’m enjoying Goldfish’s Invitation for Blogging about disablism
day”.

The good about disability

background: print-disabled and legally blind for five years into retirement.

  1. I love technology.And, wow, does disability open your eyes, so to speak, or maybe it’s our ears and brains. For example, I carry my entire rebuilt
    library of over 1000 DAISY books from bookshare.org on a lavaliere booksense along with many GB of podcasts all downloaded via Levelstar Icon Mobile Manager and Docking station. Better reading now than ever in my life, thanks to this technology and the Internet.

  2. I meet many cool people through my disability. The virtual community of #a11y and #accessibility on Twitter are my gurus and heroes, loading up my browser tabs with good articles and forging new links in my mental map of the field. In physical life, I’m the lady with the white cane to ask about
    macular degeneration.

  3. retired and still kicking, my disability + technology background + learning regime have given me a focus for hours a day of accessibility activism as well as outreach. “Turning lemons into lemonade”, they say, but I just call this a lifetime bonus for as long as I can hold it together.

The bad and Other stuff I’m Too Mad To talk about

  1. My very own profession sucks at accessibility and supporting disabilities. As a computer science educator, researcher, developer, and manager I followed the trends of not noticing disabilities, and got some immediate karma. You know where all those unaware developers are coming from? Our very own computer science accreditation and technical programs.

    And even inexcusably worse are
    the leading professional organizations, such as ACM and its decrepit website. Personally, I coughed up $200 for access to a pay wall of articles for my memoirs and on accessibility. A painfully usable digital library interface did not elicit requested help, back channel messages about accessibility problems were ignored, and all I got was a lifetime membership offer and more renewal notices. The ACM motto: “Of course, accessibility is important. But, we don’t know anything about it. Now, please go away”.

  2. If you have or expect a vision problem, don’t move to a place without public transportation! What a difference in my life if only a bus scooted along
    the major crosstown connector street a block from my house! I can take taxis when I don’t have regular driver available, can also ask for rides, but the loss of independence is a daily demoralizer. Worse, when I do get out like a regular pedestrian, drivers enter crosswalks to scare me and I know half the drivers are talking or otherwise not paying attention.

  3. Trying to establish new relationships with fuzzy faces is challenging. At least, it’s easier now that I’m out in the open about vision loss compared with prior years of hiding, but it’s still saddening not to know the details of my lifelong learning classmate features. Like everybody around a table is a talking space suit, I struggle to remember names to connect with voices and body outlines. But, at least I’m really working on people connections, finally.

Resilience: Bouncing Back from Vision Loss

June 28, 2009

Definition: Resilience: : an ability to recover from or adjust easily to misfortune or change
Miriam Webster


This post assembles some thoughts on resilience in adjusting to vision loss. Sighted readers of this blog will learn more about how to help Vision Losers with their various challenges. Visually impaired readers may glean both encouragement and practical tips to facilitate a reliant approach to vision loss. Three books are referenced: Resilience by Elizabeth Edwards; A Sense of the World by Jason Roberts; and What Blind People Want Sighted People to Know about
Blindness’ by Harry Martin. This post builds on emotional themes from the past 2 years.

Book: Resilience as Articulated by Elizabeth Edwards


Listening to the May 21 Diane Rehm interview with Elizabeth Edwards on her new book got me thinking about the factors that affect my personal resilience regarding vision loss. Let’s forget the modifier “easily” in the above definition but consider success measured in timeframe’s of months and probably other units relative to individuals, such as employment, relationships, or education. The main point is that some people seem more resilient; now, why is that?


Edwards is out there talking about her adversities because she has a limited life span in which she believes her testimonies will positively affect others. That worked for me. Her loss of parents is, of course, common to all of us, in my case, a mother’s 20 year battle with lupus and crippling arthritis while raising three children and helping her own parents. Edwards lost a 16 year old son in an automobile accident, trusting his ability to drive in slightly challenging situations, the feelings I still face with 20 somethings and remember from my own youth. Her unusually unpleasant and public problems with a philandering politician husband while fighting cancer even under the best possible financial basis are not what anyone wants to contemplate. Contrasted with early death, vision loss seems less of an adversity and more like a life alteration.


So, how did Edwards survive?
Well for one thing she finds it helpful to use her public position to talk and inspire others. Another approach is to make a major life change, like having an additional pair of children after the death of one. For her, now, the source of happiness is her start up furniture business where she has a total different framework of expertise, decisions, and colleagues.


I’ve written about energy management in the context of my Vision Loser tenets. Assuming one isn’t the type to just sit around in an adversity like vision loss, it’s interesting to examine what generates or consumes or wastes personal energy. Edwards so clearly expresses her energy rising from her furniture business in both the Diane Rehm interview and her book. I suggest that we introspect for what makes our energy levels ebb and flow, often evident in our -voices. Co-incidentally, our heroine interviewer Diane Rehm exhibits her own resilience for voice loss.

Book: The World’s Greatest Traveler, circa 1840

Jason Roberts’ book ‘A Sense of the World’ was recommended to me by a book club member. In a nutshell, British youth James Holman follows his mysterious vision loss in his early twenties with a lifetime of adventures becoming dubbed ‘The Blind Traveler’. Travel in that time period of the early 1800s is horses, coaches, boats, and feet with no way to make reservations at a motel chain or stop at fast foods at the next intersection. For sure, the travel stories are interesting, especially in Russia and France. And this is against a backdrop at home of inhospitable social treatment of blind individuals.


So, how did this blind man achieve his adventures of traveling 250,000 miles on his own. Actually, the book doesn’t describe much of what must certainly been some trying times, but here are a few factors. First, Holman had already accomplished one career in the British Navy, starting at age 12 and rising to a captain around age 16. His character was formed and he had just plain toiled very hard during his teens while France, Britain, and the U.S. battled politically and commercially. This gave him a status of officer and gentleman throughout his life, making him ever more welcome as he seemed to have accepted his vision loss and developed cheery manners for gaining help from others. Second, he found a really great gig in a philanthropic support for unfortunate naval officers, including rooms near Windsor and a bit of stipend and community. Third, he always stood out with his cane and blindness attracting attention and help. And fourth, he had a mental knack for geography and so the rigors of travel were endurable in the short run because he never seemed totally lost.
. Finally, he had a cute way of tethering himself to the moving carrier for exercise and escape from passivity.


Holman had established status as a paraprofessional who had studied chemistry and medicines at Edinburgh and his father’s pharmacy. In one travel saga, he carefully packed and memorized locations of a variety of medicines, anticipating that nobody could read the label, him from lack of eyesight and others not speaking the label language. This return to his hard won education and training to remain practically valuable to himself and others must have exhibited and facilitated resilience.


This is definitely an enjoyable book with a few additional lessons when reading and thinking about resiliency. Today with all our technology, we might not be able to get ourselves anywhere near the adventures of Holman. Logistically, we might feel obligated to gear up our GPS, WIFI for weather, and download GB of reading materials. Just packing all our adapter cords is a challenge. Moreover, safety is frequently a barrier as we face … And help along the way is often problematic. I am often asked if I need help when I pace around an airport. Sometimes I am trying to sort out the restrooms but often I just want a little exercise, but people sure think I’m lost. Even worse, occasionally people grab my arm and force me to lose balance if it looks like I’m coming too close to a chair or potted plan. Training strangers to be helpful and not hurtful just to carry on with simple travel necessities is a lot harder and more stressful than it might seem. .


What were the technologies for reading and writing in that time period?
Holman made part of his living from writing travel books, indeed invited into the Royal Society as well as battling another jealous and less talented writer. As described, he used a writing device of wires and carbon paper that could be transcribed later and free him from dictating. Now, continuing handwriting when you cannot see what you write is a skill I really admire, as I can barely sign my name!

Book: What Blind People Want Sighted People to Understand about Blindness

I find this self-published book by Floridian Harry Martin interesting in many ways but mainly as a mission I wish I could accomplish in my own life with my confusing states of eyesight and changing skill sets. Martin lost vision in his 30s and took full advantage of services provided for veterans. He doesn’t talk much about technology, but rather emphasizes relationships.


One illustrative discussion is how to tell somebody what you do, and do not, see, especially if they haven’t asked. Sure, this is a painful topic, probably more so for the sighted than the well-adjusted Vision Loser. It’s often difficult to understand how a person cannot see the food on a plate, suffering perhaps an unfortunate confusion among horseradish, mashed potato’s, and roast beef. Yet that person can walk along a contrasting sidewalk with speed and assurance. This consistent ambiguity is a routine stressor for the visually impaired.

Martin describes many aspects of mobility training, including living with a guide dog.
It’s not clear if Martin has any employment history as disabled but bases much of his social experience on community interactions. This author has used his time, energy, and organizational skills to assemble insight from many other blind people to complement his own experience.


I was especially grateful to feel included as a person with considerable residual eyesight but requiring the stamina and adjustments of print disability and mobility limitations. I also find it useful to know the extent and types of training that are available in regimented rehabilitation settings, way out of my league of experience with meager social services.

My Resilience experiences

It wasn’t until listening to Elizabeth Edwards talk about her life and book with the “national treasure” interviewer Diane Rehm that I could put a name on some of my own thinking. Indeed, a therapist tells me, “psychological resilience” is an important and well documented subject, especially related to childhood traumatic experiences. There, a “cookie person”, some one, just one person, taking an interest in a troubled child is often the most significant factor in how well children survive.

My bounces from interviews and books

Looking back 3 years to my “disability declaration day”, I can identify two major factors that moved me ahead. First was fortuitous listening to podcasts by author Susan Krieger on Dr. Moira gunn’s Tech Nation and on KQED Forum. I felt an instant recognition “yeah, vision loss in late career years, but look how she’s turned it into a positive personal and professional experience”. Although Krieger’s vision loss was unexpected and mine was anticipated for more than a dozen years, I got a sense of where I was heading. Krieger’s generous demonstration of her reading and writing equipment also provided me information I had not found available in my own community, and with the authority of her own written words.

The second factor for me was Bookshare.org. As soon as I could legally check the box for print disability, I took the simple authorization form to my optometrist, who faxed it in and within a matter of days I was registered at Bookshare and downloading. As soon as I realized I had loads of books I’d never have to pick up or return to a library outlet, no longer an easy trip for a non-driver, I really felt comforted. Then came a tangle of experiences with technology for reading, first a PC software book reader where I realized it was tough to read in bed with a Toshiba laptop. Then I investigated CD DAISY readers and ran across the APH Bookport on which I have since read hundreds of books. Bookshare’s newspaper outlet via NFB News Line enticed me to buy the Levelstar Icon Mobile Manager which provides hours of email, RSS, podcast, news, bookshare, and, recently, Twitter pleasure. Ironically, I’ve never managed to get paperwork into the NLS government provided service and remain uninspired by DRM and special equipment hassles.

But, oh, those social services


So, my passage into vision loss was relatively easy, illustrating resiliency from my technology fluency which lead to outreach beyond my current network. It’s true that to this day I have received very little help from social services which are directed to people in worse shape than I am, either financially or emotionally, often from aging. The one service that made an enormous difference was long cane training that followed my Identity Cane adoption and reflection on changed realization as a disabled person. This training and $35 device is absolutely essential for safety and mobility and only a supremely ungenerous society could deny its citizens access to safety. However, that’s how smaller, richer communities operate, as I compared with Southern Arizona Visually Impaired services.


For me, the greatest lesson in resilience in all of the above is that the individual must find a way to move ahead, action to couner the sense of loss, and immersion into the process of change. One goal of this blog is to display how well technology can provide that momentum and a range of partial solutions. This should motivate all of us to reach out to baby boomers who are technologically adept but not yet exposed to assistive technology. Note that the traditional low vision services and medical professions do a poor job, continuing to push optical solutions when audio is more appropriate.

I often read on MDSupport.orgabout the extensive and ongoing treatments for wet macular degeneration that delay and mitigate the effects of MD. I wish more people were aware of, and starting to practice use of, assistive technologies before what must be exhausting bouts of treatment. I’m convinced that medical insurance battles and the ups and downs of continued series of injections would have sapped my resiliency.

Now, there are also the daily bouts that require bouncing back. The hardest slaps for me are where I feel “professional betrayal”, like computing websites that really suck at accessibility. I also feel a twinge of demoralization when I am driven through a major intersection that I fear to cross walking because it lacks warning signals and is frequented by drivers saving a few seconds on there way to nowhere. Lack of public transportation and a richly designed community center reachable only by driving sadden me at poor public planning. But that’s another purpose of this blog, to do whatever I can to explain, illustrate with my own experience, and persistently nudge and complain. I never realized how much effort and precious energy went into activism, especially if it’s not a natural part of one’s personality.


I realize I’ve complained about lack of social service that are unevenly distributed across the U.S. Were I residing near a larger city I’d be attending more daily living classes and would have received far earlier mobility training. For me, this isn’t asking for government handouts but rather bemoaning the lack of trained personnel available to hundreds of thousands of people off the rehab grid, still active but needing different training. I simply cannot imagine what it’s like to be resilient without technology. Even ten years ago, I would have been unable to escape community limitations via technology.

Yet, I keep returning to my deepest appreciation for a $35 white stick and a few lessons from a part-time mobility trainer. Amazingly to me, the cane provides an altered sense of body location and control that in fact is a different sense of sight. Moreover, unfolding the cane causes my mind to click into independent but disabled mode, thinking every moment about what I cannot see. Also, reluctantly, I feel that I am now a symbol of both need and resilience.

Book Links

All books are available to members on Bookshare.org.
Note: I link to Amazon as an easy way to buy these books. But please do not buy the Kindle reader until
Amazon and universities stop discriminating against blind students. The issue here is that the Kindle has not been fully equipped with text to speech in its menus and operations so that all students have equal access to text books. Even then students who cannot physically hold and manipulate buttons will be left out.

  1. Elizabeth Edwards ‘Resilience: Reflections on Dealing with Life’s Adversities ‘
  2. Jason Roberts ‘A sense of the World: How a Blind Man Became the World’s greatest Traveler’ and
    NPR ‘Tales of a Blind Traveler’ review

  3. Harry Martin ‘What Blind People Want Sighted People to Know About Blindness

Related Posts from ‘As Your World Changes’


  1. 5 Tenets for Adjusting to Vision loss


  2. Memory, Identity, and Comedy: Conversations with author Susan Krieger


  3. What’s a print-disabled reader to do? Bookshare!


  4. Grabbing my Identity Cane to Join the Culture of Disability


  5. The Pleasures of Audio Reading


  6. Aren’t we Vision Losers lucky?


  7. Resources, support, and reality check for macular degenerates


  8. Consolidating links in Prescott Arizona about vision loss