Living Visually Impaired in Prescott Arizona — The 2016 Story

Resources for ppersons losing vision in the region around Prescott AZ.

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Living Visually Impaired in Prescott Arizona — The 2016 Story


If your vision is beyond correction by traditional medical and optical procedures, if you are anticipating this situation, or you are assisting someone like this, you need resources and training known as “Vision rehabilitation”.


Good news! Technology and well known practices offer affordable techniques to reduce many vision limitations to inconveniences if you’re willing to tackle the learning curve. Bad news! Prescott is limited in its access to rehabilitation personnel, awareness of possibilities, and diffusion of people who can help each other.


Below are resources collected by a Prescott resident who maintains vision loss coping skills after reaching legal blindness a decade ago. There’s plenty of room to improve the community resources. Please consider action, suggestions and collaboration for everybody losing vision in these days of abundant technology and information sharing.

What is Vision Rehabilitation


Useful techniques range from marking appliance settings by sticky dots through using a smart phone to read books, identify money denominations, and participate in social media. “Active Daily Living” refers to these sticky dot tricks and myriad organizational tasks formerly taken for granted. Serious safety concerns are addressed by “Orientation and Mobility Training” for climbing stairs, walking with the miraculous long white cane, and crossing streets. Gaining or maintaining computer communicationskills requires adapting to magnification or audio interaction or gesturing on a touch screen smart phone.


Sensitive interpersonal skills come into play when a conversation partner must be identified by voice or when sighted assistance must be requested. All these are conquered by learning and practice, leaving only the misery of transportation until the day of civilized public transit or safe, affordable driverless cars.

Where does one start recovering from vision loss?


When the page text becomes wiggly or haze surrounds you or objects jump into your path, eye doctors may help for a while, but there’s no miracle cure for effects of aging, sunlight, and genetics. Struggling to drive, read, walk, recognize faces, or see computer screens tell you it’s time to find vision rehabilitation. Medical interventions (except for cataract removal) rarely restore vision. Don’t deny, bargain, get angry, or become dependent when it’s time to learn new ways of doing things.


A great starting place is Macular Degeneration Support (mdsupport.org). You’ll find ongoing discussions about treatments, vitamins, iPads, good lamps, photography, travel, smart phones, and just about everything a Macular Degenerate lives with. We share secrets, such as the frequency of visual hallucinations called Charles Bonnet Syndrome. Guide books and tips abound. The community is international and multi-generational.


Another great resource is the “Eyes on Success” weekly podcast interviews with vision loss survivors, eyesight professionals, technologists, hobbyists, sportsters, and employed workers. A friendly pair of retired scientists in Rochester NY, one blind and one sighted, have compiled a library of easy listening MP3 files and show notes.

Where do I go for local help?


Locally, here are resources beyond the vision medical professionals who do not customarily offer vision rehabilitation as described above. Veterans have great residential training in Tucson. Students grow through school disability services and special education programs. People seeking jobs have state Department of Economic Services special programs and assistance to work. Otherwise retired people must generally develop and implement their own rehabilitation programs.



  1. The ‘People Who Care’ nonprofit offers “Confident Living” introductions to topics in Vision Rehabilitation and Causes of Vision Loss. Limited transportation and other elder support services are also available. Six-week seminars are presented when funding is available.
  2. Georgeanne Hanna is a contact with and certified rehabilitation contractor for state services that also assist retired individuals. Her phone is 928-775-5857. Watch for Public Service Announcements. Orientation and mobility trainers can be imported at state expense upon request.
  3. The Disability Empowerment Center (formerly New Horizons Independent Living center) provides independent living services for people with various disabilities, and a transportation system based in Prescott Valley. Call and ask whether vision rehabilitation services are currently available.
  4. Yavapai Library Network sites have assistive computers for people who know how to use magnification and audio assistance. Contacts are available for the National Library service “talking books” program.
  5. YC OLLI (Osher Lifelong Learning Institute) offers occasional workshops on vision and hearing loss adaptation.
  6. Prescott Fine Arts Theater honors requests for front row seating for visually impaired people and companions.
  7. Lions clubs underwrite medical and optical services for low income persons and occasional publicized events. Clarification of their services would be appreciated in the comments of this website, especially to identify matches with needs expressed here.
  8. Warning!!! Former organizations now defunct include: Northern Arizona Vision and Hearing Loss, “old blind center”, Yavapai Association for Blind and Visually Impaired (YABVI), “new blind center”. Check out carefully Daily Courier articles for dates referring to services gone from the troubled trail of Prescott vision supporters.

In summary, People Who Care Confident Living Seminars and state DES rehabilitation coordinators are the primary currently active resources. A mobile person losing vision should also consider relocating to gain a full multi-month training program from a facility such as Southern Arizona Association for Visually Impaired.

What help is available from government?


  • AZ Department of Economic Services supports a local vision rehabilitation professional (see above), special services for vocational training, and limited assistive technology. An online directory is available.
  • In 2014 Prescott established Disability and Accessibility coordination mandated by the 1990 American Disabilities Act (A.D.A). Call the city information line or http://www.prescott-az.gov/accessibility/. The federal ADA.gov website expands on citizen rights, organization responsibilities, and procedures for grievance.


    Many cities have a Disability Services Coordination council based in the Mayor’s office, alas not Prescott, but maybe in Prescott Valley. Audio alerts for street crossing are available only on Willow Creed Road near Embry-Riddle but not downtown. Sidewalk barriers, icy patches, overhanging branches, and unsafe construction should be reported to City Streets and Code Enforcement (they do respond). Visitors to downtown Prescott should not expect comfortable, safe walking conditions.

  • with A.D.A. enforcement, airlines, banks, and hospitals have trained personnel for providing equitable services. PHX airport provides walking guides through TSA to your gate (tell before checking in). Notable within Prescott are bank “talking tellers” for automated cash withdrawal (e.g. Chase Bank). Checkout devices at stores are now equipped for accessibility and privacy, e.g. typing in a PIN, but may not be enabled or known to checkout personnel.
  • social Security offers documents and transmittals in electronic formats on CD.

What do blindness support organizations offer?


The following groups are knowledgeable about all aspects of vision loss and advocate for improvements that benefit people with disabilities. Organizations that accept charity contributions are not necessarily well informed about Active Daily Living, Orientation and Mobility, assistive technology, the A.D.A, or the interface between medical and social service systems (but they should be). “Helping the visually impaired” requires education, awareness of needs, and accountability.


  • The American Council for the Blind (ACB) and National Federation of the Blind (NFB) advocate and educate on blindness issues that benefit people with all kinds of vision loss. State affiliates hold annual conferences and support local chapters (but not currently in Prescott).
  • The American Federation for the Blind (AFB) has special websites for seniors and is affiliated with the Vision Aware service. A monthly newsletter evaluates technology
  • MDSupport.org specializes in macular degeneration with myriad free downloadable guides and an ongoing support mailing list.
  • Books and newspapers are available from Bookshare.org, with a library of over 400,000 fiction/nonfiction, adult/adolescent volumes readable on the website or downloadable to book readers. The NFB NewsLine offers national newspapers and magazines in various formats and reading services, available also through BookShare. National Library (NLS) provides narrated books played on free) devices.

How about technology?


  • PC and Mac computers have built-in magnification and voice support. For Mac, VoiceOver is a click away while for PC a free NVDA package is easily installed. Various $1000 commercial products offer versatile magnification and audio with support and training. These “screen readers” enable a synthetic voice to speak web pages, documents, and buttons or typing. The technology is great, but the learning curve is steep and trainers are scarce.
  • Elegant hand-held devices can read books from NLS or Bookshare, notably Victor Reader Stream and BookSense. Amazon Kindle and Nook devices are not usable without sighted assistance.
  • The smart phone has put mainstream devices into the hands of people without full vision but with sufficient hearing. The iPhone, iPad, and iPod Touch have Voice Over built in to read buttons as fingers glide across the screen as well as text in mail and web pages. Book reader apps from Bookshare, Apple, NLS, Amazon enable downloading and listening to books, magazines, and documents.

  • Smart phone apps provide walking navigation, location awareness, remote identification of photographed objects, reading money, and other assistance. Many games and apps are fully accessible. Speech recognition increasingly replaces keyboarding. Apple devices (iPhone, iPad, iPod Touch) are fully accessible by voice (use Triple Click Home to start). Android devices lag Apple in both capabilities and training, varying across models and manufacturers. Verizon and Apple store personnel can assist in turning on these devices but only practice will determine whether they meet vision needs.


  • The blindness communities maintain a “Internet radio network” of interviews, demonstrations, and advice on all topics related to vision loss and especially technology. Accessibleworld.org, EyesOnSuccess.net, and Hadley.edu have highly informative weekly updates. These are MP3 files for subscription and downloading as podcasts via iTunes or podcatcher apps.
  • Hand-held readers also serve as recorders for presentations, memos, and bookmarks. Some also provide radios with audible controls.
  • Apps can remotely recognize and label record contents of files and food cans. Color identifiers, GPS systems, and talking thermostats exist to overcome daily eye sight annoyances. The coming Internet of Things offers in-home devices that recognize speech, read out device information, and operate remotely. Be sure you understand the surveillance capabilities of such devices as well as how failures can lock you out or inadvertently activate other devices.

  • Twitter social media is a river of news about technology and blindness under the keyword #accessibility and people like slger123 and all major vision-related organizations and federal agencies.

See the “Talking Assistive Technology” page on this website for links to products.

Where can I get more information on vision rehabilitation in the Prescott region?


This web page is your current best bet for information. Its author is a legally blind technologist. She survived the sparse services available in Prescott by seeking resources for self-rehabilitation. She has attended national and state assistive technology exhibitions and visited vision rehabilitation centers in Tucson and San Diego. She’s a user of assistive technologies and a constant tracker of external services. Ask her anything about vision rehabilitation and she’ll find an answer.


Please add comments with additional services, corrections, or opinions. Anyone interested in taking over this web page and keeping it up to date is welcome to the information compiled so far.


Isn’t it time Prescott had full service vision rehabilitation for retired people with vision loss? Following the MDSupport motto “No one should leave an eye doctor’s office thinking their situation is hopeless”, vision loss is a journey of learning and adaptation and challenges that build on established rehabilitation practices and abundant technologies. Why can’t Central Yavapai have a branch of such a facility? Advocacy needed!!!

Send corrections and additions to slger123@gmail.com or leave a message 928.445.6960.


Links to Resources

Other Posts in “As Your World Changes”

This blog started as a way to reclaim writing skills. These earlier posts convey the spirit of a changing world as vision degrades and skills increase.

Warnings About Web Misinformation


  • Web searches in Google, DuckDuckGo, Bing often link to misleading or outdated web pages. Sometimes links go to local white/yellow page directories driven by advertising.

  • The following organizations are defunct: Northern Arizona Vision and Hearing Loss Center; Yavapai Blind Center; YABVI Blind Center;; and related terms. There is no blind center on Washington Street, vacated in 2007. The phone number 928-778-0055 is disconnected. If you receive a brochure or read an article about this location, facility, or phone number, please correct the mis-informant. YABVI (Yavapai Association for Blind and Visually Impaired) appears to be a restructuring of a previous organization, now managed funds by a group of eye doctors.

  • No attempt is made here to assure accessibility of web sites beyond ascertaining content using Firefox with the NVDA screen reader. Some resources use PDF documents difficult to use with a screen reader.

  • Resources here focus on “vision rehabilitation” rather than medical treatments typically billed to Medicare or insurance. Vision Rehabilitation includes: Orientation and Mobility Training, walking with a long white cane and safely crossing streets; Active Daily Living, tricks and techniques for optimizing remaining vision in everyday life; reading newspapers and books; and using technology by magnification or voice interaction.

National Level Organizations

Vision Information and Support

Federal Government

Under the Americans with Disabilities act we can claim equal access to most resources. However, “civil rights are not self-enforcing”. The following websites address issues of equality and offer many paths to further public information.

  1. Disability.gov, connecting the disability community with information and opportunities drill down by state and topic, e.g. to Arizona and Transportation.
  2. White House Disabilities Coordination including monthly conference calls
  3. Federal Elections Help Americans Vote Act implemented by Yavapai County, supporting private and independent voting on site
  4. FCC 21st Century Communication Act covers cell phones,audio and video descriptions, and PLAN, the Personalized network for public safety alerts
  5. ADA.gov, the law, policies, enforcement’s.Dept of Justice and YRMC settlement on training citizen complaint invokes A.D.A. to change procedures and train staff

State Level Organizations

Government

  1. Directory of services from Department of Economic Security

  2. AZ Governor Council on Blind and Visually Impaired

  3. SunSounds Reading Services
  4. Assistive Tech Training Center (Cottonwood)
  5. National Library Service Talking Book Arizona contact

Resource Centers

  1. SAAVI (Southern Arizona Association for Visually Impaired (Tucson), website describes full service vision rehabilitation
    Arizona Center for Visually Impaired (Phoenix)
  2. (PDF) ViewFinders Low Vision Resource Directory (PDF)

  3. VRATE, Vision Reabilitation and Asstive Technology Expo is held annually in Phoenix, free, excellent coverage of state-wide capabilities

  4. Arizona Assistive Technology Exchange

Chapters of national organizations

  1. AZ Council for Blind azcb.org
  2. NFB (National Federation for the Blind) Arizona Resources

Yavapai County and Prescott Area

Government

  1. State Department of Economic Security Rehabilitation sustains local vision rehabilitation and coordinates orientation and mobility training.
  2. Prescott Public Library may have screen readers on notebooks and vision aware Computer
    Mentors. Also provides membership with National Library Service.

  3. City of Prescott Accessibility and disability coordination (A.D.A) Meeting the A.AD.A law!!!

Nonprofit and other services

  1. Georgeanne Hanna Certified Vision Therapist and Certified Low Vision Therapist, georgeannehanna@gmail.com, phone 928.775.5857. Contact directly to arrange state rehabilitation services.

  2. Disability Empowerment (formerly New Horizons Independent Living) Center (Prescott Valley)
  3. “People Who Care Confident Living Seminar (

Technology Assistance


  1. Verizon can turn on iPhone VoiceOver, Triple-click-home
  2. Best Buy sells Apple products with good accessibility (iPhone, iPod Touch, iPad) and Android tablets with unpredictable accessibility
  3. Chase (and maybe other) banks have “talking ATM” machines that read menus into earphones to dispense cash and perform other services.
  4. Yavapai College Osher Lifelong Learning Institute offers a track of technology courses.

  5. Prescott MAC and PC clubs have held programs on assistive technology


Revised July 25 2016, slger123@gmail.com
“As Your world Changes” article on “Living Visually Impaired in Prescott AZ” — 2016 http://AsYourWorldChanges.Wordpress.com

Sandwich Board Signs Are Dangerous!

The Costs of Sandwich Board Advertising Signs


  1. Are wooden sandwich board signs dangerous? Are they safe when placed according to city code?
  2. Who pays if there’s an accident between a pedestrian and a sign? How much liability insurance is required of sign owners? How much liability insurance is apportioned to pedestrian accidents within the city budget?
  3. What is the cost/benefit to merchants? citizens? tourists?
    What is the risk/benefit to merchants? citizens? tourists?


Submit your answers below:

Accident report: Sandwich Board Sign Injures Pedestrians on Downtown Prescott Street, October 14 2016

Deceased was walking along Whiskey Way on a nominal weather day using her mobility cane. A careless runner pushed through a crowd of children leaving their school. Several people bumped into each other, with a few falling down.


Deceased attempted to step aside while untangling her cane from a sandwich board advertising sign. Such open wooden frame barriers are positioned approximately every 10 feet. Other pedestrians were also injured as signs broke apart or flattened on the sidewalk. A cascade of signs and bodies caused many additional falls.


Deceased struck her head on a sharp sign edge and a second time as she fell onto the street, unconscious.


Since the signs that caused injuries were legal under the city’s ordinance, no citations were issued. Liability remains to be determined. Lawsuits are expected against the city, merchants, and sign distributors. The careless runner has not been located, probably ducking into a local bar after the chaos, perhaps not even realizing its cause.


Let’s prevent this accident from happening! Any pedestrian is vulnerable to unsafe signage, anywhere. And, about those saw horses and barriers that warn of unsafe pavement, they’re dangerous, too! Tell Prescott City Council to ban advertising sidewalk signs and fix sidewalks that need fixing.


Why is accessibility so hard? Glad you asked!

Dear President of ACM Vint Cerf:


In your article “Why is Accessibility so hard?” , you invited comments and received many valuable references and opinions from other non-members of ACM. However, anonymous comments like mine seem not to be appearing since submitted for review after November 8. I worked hard on this little piece and have some constructive suggestions along the lines of an important ACM computing themes, namely “computational thinking”. As a former member of ACM, thoroughly disgusted by the un usability of the ACM Digital Library and haphazard HTMl of acm.org, I was hoping to find a genuine thread of change. So, not knowing if my submitted comment below is stifled or just dropped off your radar of comment reviewing, here’s my advice anyway.

Analyzing the computing field accessibility deficit

Thanks for asking. My “As Your World Changes” blog has myriad suggestions for overdue change to accessibility practices within computing:

My favorite resources — great reading

As a late life vision loser,and ex-ACM member, I hope the previously commented resources expand your frames of reference. Please add my favorites:(1 Wendy Chisholm and Matt May, “Universal Design for Web Applications” book; (2) WebAim.org screen reader user survey, WAVE accessibility checker, and pages of excellent practical advice; (3) the “accessibility virtual water cooler” linked by #a11y and #accessibility on Twitter; (4) the iBlinkRadio Android and IOS app portal to podcast and communities for visually impaired tech users; (5) a personable informative Rochester-based Viewpoints radio/podcast on products and daily living tips for vision loss. at http://viewpointsplus.net

Quintessential challenges: computational thinking and omitted requirement accelerating costs

Why do some think accessibility is hard? The good news is that we have at hand the quintessential “computational thinking” situation and mental tools for tackling much of accessibility. The bad news is another quintessential situation: the software economics of increasing cost of re mediating a missing requirement. Furthermore, attitudes are exacerbated by ignoring maturing web standards and disengagement from high performing professionals with disabilities in the assistive technology industry. ACM has also fostered an image of social exclusiveness through its misguided touting of the wonders of the “NO BLIND ALLOWED” symbol CAPTCHA (as if these magically warded off intruders other than us). How much of the difficulty is social rather than technological?

Remediation opportunity: learn by fixing your own website

Luckily the remediation opportunities for learning through and fixing accessibility flaws are readily available. Start with typing your institution, personal, or favorite web page into http://wave.webaim.org. This free and instantly usable analyzer will highlight the semantic structure of the page meaningful to screen reader users like me. It’s highly likely you’ll also expose accessibility deviations from standards. Common zits are: unlabeled form elements leaving me wondering what to enter in the edit box; non informative link like “click here” that require reading the context; missing or mis-ordered headings that obscure the page outline, forcing me into tabbing among HTML elements linearly without a comprehensive outline for discovery and navigation; or graphics without descriptions as to purpose and content. Does your experimental analysis make you wonder why web developers didn’t follow even these simple rules of accessibility? If you’re accountable for the page, like this very one from acm, then how should you change your process, contractors, or attitudes if better accessibility is really a goal?

Remediation Opportunity: Establish CSEdWeek challenges

Here’s another experiment I’ve performed myself (see blog posts). Computer Science Education Week is a big publicity deal for prestige and recruitment into a presumably non-discriminatory profession. Are there at least minimal standards for accessibility of partner web sites? Is the language inclusive, at least recognizing that pedagogical tools like Alice are problematic and that CAPTCHAs on the contact page are offensive? A little bit of shame and accountability can be shared by all if we no longer act like accessibility is always hard but rather start fixing simple problems, learning along the way.

Remediation Opportunity: Listen to people who daily conquer accessibility challenges

One more opportunity is to cross the disability social engagement boundary and actually sit down with somebody who uses the wondrous technology available. You can familiarize yourself for freeze by installing the world class NVDA Windows screen reader, turning on VoiceOver on a Mac or IOS device (triple click home). Here’s a “computational thinking” experiment: can you gain the same information sighted or blind folded? Why not? what do you have to learn to communicate, hold in memory, sequence differently, or give up on? How do you feel when offered an unlabeled button? Where do you go to learn new Techniques and good practices (hint: applevis.com and iBlinkRadio app)? Really, visually impaired folks can talk, explain, and share their joy using technology as well as constructive frustrations. Just ask!.

The Remaining Challenge after Remediation: absorbing complex information

Ok,there is one class of challenging problem beyond myriad simple accessibility rules and negligent process instances mentioned. Complex data structures like tables are memory taxing without vision and graphs and charts and animations require alternative sensory representations. Again, this is computational thinking as in concrete or multiple representations of the underlying information and semantics. Why doesn’t ACM offer a prize for advances here, which also might help everybody better consume visual information?

Take heart, all you future vision losers, as resources abound

Finally, to the many of you who will be losing vision in late career or retirement? Take heart, there’s never been a better time! You must locate whatever vision rehabilitation services are available locally, like Lighthouse or Independent Living but don’t let the strange web of state and charity “helpers” limit you. Macular degenerates can find a veritable wikipedia of practical and emotional sustenance at http://mdsupport.org. The podcasted media of Main Menu ACBRadio, Seratech perspectives (iBlinkRadio), and the TechDoctor can ease you into product assessment and sharing the joys of now abundant mainstream products. An iPod Touch is a great “gateway drug” into this world if you haven’t already been bitten by the Apple bug. Becoming print disabled isn’t all bad, because you are now eligible for near free daily newspapers and libraries of thousands of easily downloadable books for synthetic speech reading on devices and apps far better than sighted users buy. Yes, there’s a monster learning curve, but we technologists are well positioned for this one more life adjustment. If we can now get our profession into the solution side rather than producing more generations of uneducated students accepting such poor role models as acm.org, then we might even be able to contribute better our valuable experience to a professional society that understands disabilities as computational thinking differences.

summary from my decade of adjustment to vision loss using technology with class:

get cracking on learning about accessibility by fixing simple, obstructive, instructive problems. Listen to accessibility professionals and high performing persons with disabilities who offer their spirited advice through social media. Only then will the goals of ACM style research be brought to fruition and we will identify the intrinsic difficulty of accessibility.

Yours, in respect and hope for change, finally

Susan L. Gerhart, retired visionary computer scientist and myopic macular degenerate
slger123@gmail.com
blog on adjusting to vision loss: https://asyourworldchanges.wordpress.com

A Notable, Inimitable Woman: Helen Keller, 1880 – 1968

Here is an outline of my research for a course on Notable Women last session at Osher Lifelong Learning Institute at Yavapai College. I was fascinated by the question: what happened to the rest of her life after the incidents portrayed in the “Miracle Worker” plays and movies. As my reading progressed to reveal her decades of activist publication and public attention, the deeper question became “how did she cognitively process so many other writings and human contacts into coherent and relevant materials that sustained her spirit and finances?”.


speaking personally, as I’ve portrayed earlier in this blog, I have rewired my brain to read and write differently without using vision. Now, the Internet and trusty screen readers and RSS clients bring me loads of information, but I still find it difficult to organize even a small article like this post. Keller published many articles in popular publications like “Ladies Home Journal” but she also emoted some very fine rants on socialism, unions, suffrage, and disability civil rights.


Answering my questions from the resources below, especially the New Yorker article, she: mastered French and German at Radcliffe; read European newspapers; always had personal assistants; selected topics of interest for her human readers to communicate by hand tapping, lip reading, or Braille translation; wrote sections on a Braille typewriter, assembled and edited with assistance; wrote and received copious letters in the style of the time; made friends with Mark Twain, Alexander Graham Bell, and the presidents du jour; traveled extensively; and generally got around a lot. Whew! But still, how does one assemble a model of the world coming without hearing or seeing? The New Yorker article portrays her cognitive functioning as much like poetry or highly flowery narrative. That is, she took in facts and physical object descriptions, asked questions, built a sense of her surroundings, and embellished with imagination constrained by her editorial assistants. Yet, there is such a difference experiencing the situation of labor unions from a film like “Norma Rae” and reading about sweat shops and factory safety mishaps. It still intrigues me that her reality matched sufficiently her colleagues and acquaintances that she could not only participate but also influence her times. Interestingly, some of that interaction came from a silent movie, vaudeville infomercial’s, and an attraction for press attention that vies with modern athletes and actors.


Yet, that same cognitive generative process caused lifelong doubts in others about her actual abilities versus the influences of Teacher and other assistants. A bizarre accusation of plagiarism arose at age 12 when professional pride and pettiness ran amok over a misunderstanding of originality of a story she told in a letter. Now, today we cannot get college students to differentiate copy-paste research from critical thinking, so one wonders how a 12-year-old could really appreciate the social significance of separating what one is told, holds in memory, and retrieves as a story gift from copyright and issues of attribution.


Well, anyway, if you wonder how minds work with different sensory limitations, take a look at the documentary on Youtube, the New Yorker analysis, and some of the cited oddball life passages.

Background</h3

Other facets not highlighted in documentary and popular bios

Finally, I think HK would have been great on Twitter, with pithy, passionate expressions of her daily insights, frustrations, and relationships. Happy 5th birthday, Twitter and many thanks to Accessible Twitter for keeping me in touch with the world.

Disablism: the good, Bad, and Maddening


Disablism Day May 1 2010

I’m enjoying Goldfish’s Invitation for Blogging about disablism
day”.

The good about disability

background: print-disabled and legally blind for five years into retirement.

  1. I love technology.And, wow, does disability open your eyes, so to speak, or maybe it’s our ears and brains. For example, I carry my entire rebuilt
    library of over 1000 DAISY books from bookshare.org on a lavaliere booksense along with many GB of podcasts all downloaded via Levelstar Icon Mobile Manager and Docking station. Better reading now than ever in my life, thanks to this technology and the Internet.

  2. I meet many cool people through my disability. The virtual community of #a11y and #accessibility on Twitter are my gurus and heroes, loading up my browser tabs with good articles and forging new links in my mental map of the field. In physical life, I’m the lady with the white cane to ask about
    macular degeneration.

  3. retired and still kicking, my disability + technology background + learning regime have given me a focus for hours a day of accessibility activism as well as outreach. “Turning lemons into lemonade”, they say, but I just call this a lifetime bonus for as long as I can hold it together.

The bad and Other stuff I’m Too Mad To talk about

  1. My very own profession sucks at accessibility and supporting disabilities. As a computer science educator, researcher, developer, and manager I followed the trends of not noticing disabilities, and got some immediate karma. You know where all those unaware developers are coming from? Our very own computer science accreditation and technical programs.

    And even inexcusably worse are
    the leading professional organizations, such as ACM and its decrepit website. Personally, I coughed up $200 for access to a pay wall of articles for my memoirs and on accessibility. A painfully usable digital library interface did not elicit requested help, back channel messages about accessibility problems were ignored, and all I got was a lifetime membership offer and more renewal notices. The ACM motto: “Of course, accessibility is important. But, we don’t know anything about it. Now, please go away”.

  2. If you have or expect a vision problem, don’t move to a place without public transportation! What a difference in my life if only a bus scooted along
    the major crosstown connector street a block from my house! I can take taxis when I don’t have regular driver available, can also ask for rides, but the loss of independence is a daily demoralizer. Worse, when I do get out like a regular pedestrian, drivers enter crosswalks to scare me and I know half the drivers are talking or otherwise not paying attention.

  3. Trying to establish new relationships with fuzzy faces is challenging. At least, it’s easier now that I’m out in the open about vision loss compared with prior years of hiding, but it’s still saddening not to know the details of my lifelong learning classmate features. Like everybody around a table is a talking space suit, I struggle to remember names to connect with voices and body outlines. But, at least I’m really working on people connections, finally.

What Vision Losers Ask in Searches

Personal Themes: Planning, mobility, advocacy, citizenship


In the preceding post on search terms about technology, I recapped some lessons about technology assisting me as a Vision Loser: the wonderful free NVDA scrreen reader; gaining independence using a talking ATM; some technicalities of working with the generally usable WordPress platform; Applemania for assistive technology; and the over-arching theme of TTS, i.e. text-to-speech with synthetic voices. The terms people use to reach my blog expand my range of topics even if I have to make up an interpretation for the searcher’s goal. This post covers more personal than technological topics.

Terms and Basics: “Legally blind, disability, and personal meaning”

Search terms used to reach this blog

  • creative activities for the legally blind
  • what is print-disabled.
  • can a legally blind person join the navy
  • legally blind disability
  • culture of disability
  • identity after disability
  • who are the legally blind non-readers?
  • are legally blind people fully blind
  • jobs for us citizen for partially blind
  • forms for legally blind declaration
  • adversity as change in disabilities
  • resilience partially sighted
  • disability resilience visual impairment
  • orientation and mobility trainer
  • the use of technology and loss of eyesight
  • declaration of legally blind

VisionAware glossary of vision-related terms offers one framework. This topic is certainly a matter of curiosity for both sighted and Vision Losers like me. Frankly, I am rather indifferent to precise terms and refer to myself as blind, partially sighted, visually impaired, disabled, etc. according to how I think the person I’m communicating with will understand and react. More important, I believe, is that the Vision Loser can be matter of fact and comfortable about the situation. Of course, practically speaking, there is that extra box to check on tax forms, that ID card or driver’s license card, the signature line you’re asked for, and many other details of personal and financial transactions. To my knowledge, there is no moment you get a stamp of “legally blind” but rather a process lets you know it is happening. In fact, vision may fluctuate up and down along scales of acuity and bredth of field that was for years my diagnosis of “stable, but precarious”. In fact, I walked through TSA checkpoints with a white cane in one hand and a still valid driver’s license for ID and even once rented a car from Hertz when my companion couldn’t get a debit card approval. No one ever asks “hey, are you legal?” except in bars. And often the situation itself such as bright lights may define whether your sight is functionally useful. What I find more interesting and challenging is planning and navigating the rehab maze. That will be a future post. For now, the above terms just identify some of the ways people look for information.

Using white, symbol, identity canes

  • white cane low vision
  • how to use symbol cane
  • legally blind safety issues
  • white cane with GPS
  • starting to carry a white cane
  • he walks with white cane
  • define white cane
  • waving cane accident car 2
  • blind man’s Harley: white canes and gend 2
  • slim line white cane
  • do i need a white cane with my vision
  • use white cane
  • white cane adjusting
  • blindness and adjusting to the white can
  • tip white cane
  • symbol cane
  • symbol cane for low vision
  • the cost of not using my white cane
  • blind woman walking with white stick
  • white stick and drivers have to stop
  • using the white stick
    safely

  • no sidewalks for the disabled
  • measuring for white cane
  • using an id cane
  • emotional response to using a mobility cane
  • partially sighted use of white stick
  • white cane technologies

Terminology: identity cane in U.S. called symbol cane in U.K. and differs from ‘long cane’ used for practical mobility. Colors also may differ internationally, white in the U.S.


Back when I was starting to require mobility assistance, I wrote about the values of using an Identity Cane. This instrument was a puny stick valuable for poking around and showing others of my disability, but wasn’t functionally useful for walking or climbing stairs safely. Due to the sorry state of social services in the U.S., notably retirement-focused Arizona, it took a long search, months after I really needed help, to find an OMT (Orientation and Mobility Trainer). Gifted from the state with a $35 sturdier cane matched to my height and walking style, I gratefully received a few lessons in waving the cane and negotiating street crossings.

Here’s the answer to the basic question. You use the cane either tapping or sweeping ahead to tell of rough surfaces, dips, curbs rocks, people’s feet, etc. Meantime, using residual vision, you watch for upper body hazards, like trees, mailboxes, street signs, elbows, etc. Climbing stairs, I use the cane to tap each step then sweep when I think it’s a landing, with bottom steps being the most treacherous. Crossing streets requires far more strategies of listening for and watching turners and signal timings, with the cane displayed or waved to attract drivers’ attention. That
is how I do it, probably not completely according to rules, but I haven’t been to the Emergency room in years. Note: as to measurements, this does require the help of an OMT person watching you and your own personal experience with a length that feels comfortable. It’s a matter of a few inches more or less. Furthermore, at first your arm gets tired so a few trial lengths may be affected. My OMT gave me two specific useful pieces of advice: (1) avoiding a nasty step on the path to my lifelong learning classes and (2) make yourself “big” and noticeable at intersections.


My current problem is actually when people try to help and distract me from the synchrony and concentration of using the cane. Often companion walkers get in a hurry or talking and tell me something like ‘5 steps’ when there are are 4 or 6 or, never matter, let me take the steps at my own pace and style. Most of this training is simple but just requires someone to nudge you out and help build confidence, then practice and learning one’s own mistakes and recovery strategies. This is a difficult interpersonal issue as to how to refuse help as well as when and how to ask for assistance.


Another concern is becoming a hazard myself, like tripping a shopper looking at grocery shelves. Or tangling canes when walking with someone with their own mobility difficulties. And, I’m currently having a real phobia for street crossing, with too many instances of drivers entering the crosswalk a few feet away and just plain realization of the dangers of inattentive drivers in a hurry. Now, we need a national law to install yet another electronic gadget in cars, receivers from a cane telling drivers we’re around — like your GPS might say ;blind pedestrian at corner waiting to cross Willow Creek. Please wait’.

Accessible websites and advocacy

Terms asking about accessibility

  • “heading list” + accessibility
  • computer curb cuts wikipedia
  • bad accessibility websites
  • page layout of whitehouse.gov
  • sites with bad accessibility
  • image alt tag checker
  • how do i find my alt tags for my picture
  • headings accessibility test
  • universal design for web applications we
  • pdf crippled
  • Google book search accessibility


It comes with the territory that something in society makes a Vision Loser feel like a real loser, for avoidable reasons. Those ‘advocacy juices’ start to flow, you learn why social practices are so harmful, find and apply constructive advice, rationalize compromises, use mistakes as educational opportunities, and generally contribute to the betterment of society. Well, that would certainly be nice but if it were that easy a few active complainers could clean up the messes in society that hamper our ability to operate like everybody else. For me, with my lifelong exposure to the Internet, web accessibility is a perfect advocacy focus. For others, safety or OMT or low tech devices or public transit or rehab or costs might blend professional backgrounds and advocacy missions.


This is my major criticism of inaccessible web sites. If only headings were used to organize and label page parts, screen reader capability to navigate by headings could be fully utilized. Literally hours of wasted time extracting mental maps of pages or tabbing around the wrong lists could be avoided. Indeed, I think failure to use headings is a root cause of many accessibility problems, e.g. lists of unrelated links, maintenance messes, … When I see a page using an ‘h4’ only, I know page authors don’t understand separation of content and presentation nor are they using established progressive enhancement engineering processes. My recommendation in my complaint to site owners is to attend accessibility courses, read myriad blog posts, track #accessibility and #a11y on Twitter, and read Chisholm and Mays ‘Universal Design for Web Applications’. Other culprits, however, are web page editing and content management systems that, hopefully, will soon be superseded by projects like Drupal with accessibility as an important selling point. H1, H2, H3,… is so fundamentally sound for both writing and reading web pages.

Citizenship and Electronic Voting

Terms

  • the nitty gritty of electronic voting

I wrote about my experiences in the 2008 primary and national elections with a generally favorable impression of the usability of the voting tablet. However, voices sped up or slowed down and I had no way of validating the printed output. The voting system vendor Premiere Election Systems is now defunct, with a rather poor history of counting accuracy complaints. Who knows what’s next for this autumn’s national and local elections. It would be great to have a more common interface among similar devices: voting, ATM, store check-out, remote controls, thermostats,… Common functions include: navigation, voice control, selection, confirm/cancel, etc. for users and various administrative setup of ballots, etc. Foremost is that ‘all things should talk to users’ and eventually hold on-board speakable manuals and environmental information. Just
wishing…


My main message on citizenship is that vision loss should not be a disable for citizenship but we have to be take the initiative to make the voting experience productive. For some people, independence and privacy are not big issues, so taking a sighted person to mark you ballot feels fine. For others, like me, I want to stretch the system and use voting as a teachable moment for family, friends, and community. That’s a tall order but legally mandated. For U.S. citizens now is the time to find out how you can vote in the upcoming elections, like calling or visiting local election boards. This was a good experience for me and even helped the election officers to watch me at work.

Remembering Sputnik: Just a memoir moment

Terms used to reach this post

  • impact of sputnik on mathematics
  • how did sputnik affect America mathematics?
  • how did Russia create sputnik first
  • sputniks effect on the public
  • how did sputnik effect the future?
  • political sputnik
  • how did sputnik effect public education
  • how did sputnik affect education
  • world effects of sputnik
  • sputnik tv public
  • bay of pigs then sputnick song
  • computing arpa “von braun”
  • sputnik lead to modern technology such a
    space race 1950’s and military industrial 1

This topic has nothing to do with vision loss or accessibility but rather is a memoir and personal history of Sputnik. For many scientists and technologists in our 50’s and 60’s Sputnik was a notable national event (1957) that precipitated funding for and attention toward math and science education. Summer institutes for high school students and teachers, fellowships, and, drum roll, DARPA and the advent of the Internet. Our Social Media class has proposed lifelong learning activities where we collect, post, and record our experiences and related materials for our progeny and educational systems. Amazingly, most of us had little American history covering WWII, Cold War, etc. just lived through it haphazardly. Today’s students also don’t get much modern history, so our event recollections, like the NPR story Corp project, might provide legacies and primary materials.

Thanks for asking!!

Search terms provide really useful feedback.